Hi, I’m Lindsay.
My husband of nine years, Pete, and I raise our two daughters, Chandler and Landry, on a farm in Central Illinois. In June of 2020, Landry, our youngest, was diagnosed with an ultra rare genetic disorder called CHAMP1. At the time, she was only the 68th person worldwide with this diagnosis. Through partnership with other families and the CHAMP1 research foundation, we are on a mission to raise awareness, advocate for inclusion, celebrate diversity, and ultimately, to find a treatment.
At home it is our priority to provide Landry with the best medical care and therapy services, cultivate a positive environment for learning and growth, and to love hard regardless of strength or ability. We are far from perfect and things get messy, but I invite you along on our journey of living, learning, and Loving Landry Jess.